Last week was HS Awareness Week. HS is short for Hidradenitis suppurativa. It also happens to be my flavour of chronic skin disease.
“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” ― Kahlil Gibran
I suffered from undiagnosed Hidradenitis suppurativa (HS) for over 20 years. In this Facebook Live, I get a teeny bit windswept and interesting (read: emotional) as I share what it’s like to live with an undiagnosed, painful and embarrassing skin disease for over two decades. Spoiler alert – it really sucked!
Along with my story, I share a little about what we know about HS, a couple of books that have really helped me, and just why I believe the Autoimmune Protocol is the health framework was the right one for me.
As I hit ‘publish’ on this post, the video has been viewed 2,044 times on Facebook. That blows my little mind!
The video is longer than usual (almost 30 minutes) – it’s a very personal subject for me. If you suspect you suffer from HS (or you know someone who may be affected), please share this post. It’s so important that HS sufferers know that they are not dealing with this alone.
Other HS-related posts and resources:
30-days of back-to-basics AIP in a supported and supportive environment surrounded by other people who get it.
To learn more or to join us, click here.
It’s not all bad! Having a chronic illness (like HS) can teach us GREAT things, too…
HS made me feel dirty and that made me feel ashamed.
The Shame of Hidradenitis Suppurativa was when I first really started recognising what a number HS had done on me. Thanks, Brené Brown!
The two books that I reference in the video:
The wonderfully inclusive dedicated HS Facebook support group that helped me stay sane when I first had a name for my skin issues and started using diet and lifestyle to improve my horrific symptoms: